Monday, June 30, 2014
Following us?
I decided to check up on this blog today, and realized that we are still getting views here! Wow! While we no longer update this blog, we do have another one! Come check us out over at www.mormonjourneyoffaith.blogspot.com We'd love to "see" you over there!
Tuesday, June 5, 2012
I wanted to update everyone on Stewart's condition.
As of today he has gone 18 1/2 weeks without passing out!!!
We found a doctor in town that was able to prescribe him a medication that absolutely changed our LIVES!!! He has A-Typical Narcolepsy. Who would have known that a single pill could change things so much?!
Stewart has lost 60 lbs and is now searching for a job! If any of you know of anything, let us know! We're up for anything. He's been cleared to do anything and everything!
Thank you so much for all of your help. We are forever grateful.
As of today he has gone 18 1/2 weeks without passing out!!!
We found a doctor in town that was able to prescribe him a medication that absolutely changed our LIVES!!! He has A-Typical Narcolepsy. Who would have known that a single pill could change things so much?!
Stewart has lost 60 lbs and is now searching for a job! If any of you know of anything, let us know! We're up for anything. He's been cleared to do anything and everything!
Thank you so much for all of your help. We are forever grateful.
Sunday, September 26, 2010
Our Lives Post Mayo
I wish I could sit here and tell you all that we have fixed Stewart. I really wish that I could. Unfortunately, I can't. All I can tell you is that we know what is happening. How to fix it is another story.
When we were in Minnesota, none of the tests they did showed anything wrong. None of them. We were really discouraged. That's why we haven't written on here very much since. We all had such high hopes that we would be able to figure out what was going on, and when we came home we would have a plan to help. It was really hard to come home and be in the same position we were in before. Really hard.
We were told by the doctor that he didn't know how to find out what was wrong. He talked to our doctor in Salt Lake, and they decided to take his blood pressure a lot. We have a home monitor so, I started to take it when he started to feel sick. On 3 readings within 5 minutes of eachother I got these results (in order) 194/149, 80/43, 117/73. Here is a quote from The American Heart Association "Blood pressure below 120 over 80 mmHg... is considered optimal for adults. A systolic pressure of 120 to 139 mmHg or a diastolic pressure of 80 to 89 mmHg is considered "prehypertension" and needs to be watched carefully. A blood pressure reading of 140 over 90 or higher is considered elevated (high).Optimal blood pressure with respect to cardiovascular risk is less than 120/80 mm Hg... However, unusually low readings should be evaluated to rule out medical causes."
So Stewart's range from dangerously high to dangerously low to normal. What happens is it spikes and he feels really crappy, then it drops and he passes out, then it will either spike really high again and wake him up and repeat the same thing over and over again, or it will go back to normal, leaving him with a horrible headache, but fine.
They started him on blood pressure pills to raise his blood pressure, but decided that that wasn't smart, because it already raised so much on it's own. They don't want to put him on pills to lower it because of the same reasons.
We are waiting to hear back from his doctor in Minnesota tomorrow. Hopefully he will have a plan. He said that this is really rare and they aren't sure how to treat it.
We appreciate everything that everyone has done for us, and we hope to be able to tell you better news next time!
When we were in Minnesota, none of the tests they did showed anything wrong. None of them. We were really discouraged. That's why we haven't written on here very much since. We all had such high hopes that we would be able to figure out what was going on, and when we came home we would have a plan to help. It was really hard to come home and be in the same position we were in before. Really hard.
We were told by the doctor that he didn't know how to find out what was wrong. He talked to our doctor in Salt Lake, and they decided to take his blood pressure a lot. We have a home monitor so, I started to take it when he started to feel sick. On 3 readings within 5 minutes of eachother I got these results (in order) 194/149, 80/43, 117/73. Here is a quote from The American Heart Association "Blood pressure below 120 over 80 mmHg... is considered optimal for adults. A systolic pressure of 120 to 139 mmHg or a diastolic pressure of 80 to 89 mmHg is considered "prehypertension" and needs to be watched carefully. A blood pressure reading of 140 over 90 or higher is considered elevated (high).Optimal blood pressure with respect to cardiovascular risk is less than 120/80 mm Hg... However, unusually low readings should be evaluated to rule out medical causes."
So Stewart's range from dangerously high to dangerously low to normal. What happens is it spikes and he feels really crappy, then it drops and he passes out, then it will either spike really high again and wake him up and repeat the same thing over and over again, or it will go back to normal, leaving him with a horrible headache, but fine.
They started him on blood pressure pills to raise his blood pressure, but decided that that wasn't smart, because it already raised so much on it's own. They don't want to put him on pills to lower it because of the same reasons.
We are waiting to hear back from his doctor in Minnesota tomorrow. Hopefully he will have a plan. He said that this is really rare and they aren't sure how to treat it.
We appreciate everything that everyone has done for us, and we hope to be able to tell you better news next time!
Monday, August 30, 2010
Mayo Clinic
Well, we're back! We went out to the Mayo Clinic for 8 days, and we are finally all settled in again.
I tried to put more updates on here while we were gone, but the computer I was using didn't want to work very well.
We had a lot of tests done and we found out....
Not much! We are taking Stewart's blood pressure every time he passes out to see how low it drops. It's kind of an art getting the timing just right, and I'm still working on that, but hopefully we'll get some good readings in the next few days and be able to report back to the doctor in Minnesota. They are pretty sure that he has a blood pressure problem on top of some Cardiology problems.
It was a long trip. We learned a lot, and hopefully we are now one step closer to finding out what is wrong with Stewart, and to getting him better.
I tried to put more updates on here while we were gone, but the computer I was using didn't want to work very well.
We had a lot of tests done and we found out....
Not much! We are taking Stewart's blood pressure every time he passes out to see how low it drops. It's kind of an art getting the timing just right, and I'm still working on that, but hopefully we'll get some good readings in the next few days and be able to report back to the doctor in Minnesota. They are pretty sure that he has a blood pressure problem on top of some Cardiology problems.
It was a long trip. We learned a lot, and hopefully we are now one step closer to finding out what is wrong with Stewart, and to getting him better.
Friday, August 20, 2010
Minnesota
So, we've been in Minnesota since Tuesday night. It's been a crazy couple of days, so I haven't had a chance to update anyone, but here ya go! What we've done since we got here:
Tuesday:
The plane rides were good. We spent the whole day getting on and off planes. It was tiring, but Stewart was able to make it through the airports without too many problems. We got to our hotel at about 11:15 pm and decided that we were going to just go to bed, and go to the ER in the morning.
Wednesday:
We got up in the morning and went into St. Mary's Hospital's Emergency Room. (We had to do this so that we could get an appointment with the doctor faster.) We got right in and they took us back to a room. There was a sign on the wall that said that EVERY patient had to get dressed in a gown, so we were expecting someone to come give us one or something. Instead a nurse came in and asked us what was going on. While we were telling her about Stewart, the Doctor came in. We finished telling them what was going on, and they told us to just go over to the Mayo Clinic (which is a separate building) and check to see if there happened to be a missed appointment for the Cardiologist.
We went to the Clinic, got checked in, and sat and waited from 12:30 to just before 4. Stewart was in a wheelchair, because he wasn't feeling well. I had to go to the bathroom, so I asked the lady at the desk to keep an eye on him. When I came back, I found Stewart on the floor with 3 different ladies around him. He had passed out and fell out of his chair! Soon an ambulance came. We decided that since we had waited all day for an appointment and we still hadn't gotten one, that we'd go the the ER again. The ride in the ambulance was uneventful, which was good. The guy that was first on the scene after Stewart passed out, said that he felt Stewart's heart out of rhythm.
When we got to the ER, they did an EKG, chest X-Ray, and gave him an IV. Eventually they decided that they needed to keep him over night to watch him. (You wouldn't believe how HUGE this hospital is! It's seriously a 1/2 mile down a few hallways from the ER to where his room was!) Another doctor came in to talk to us, and we told him the whole story again. He scheduled a bunch of tests, and then released us! It was the shortest hospital stay ever!
Thursday:
We got up early in the morning, and Stewart got a Holter Monitor on. Then, we got blood drawn. Then he had an Echocardiogram done. Then after lunch, we waited in the waiting room at the Neurologist's office to try and get an appointment with one of them. We waited for almost 4 hours there. When they were no longer taking patients, we walked around a little street fair they do on Thursdays and went back to the hotel. You wouldn't think that waiting around is tiring, but it is.
Friday:
I am sitting in an office waiting room at St. Mary's. Stewart is having a Tilt Table Test done. It checks how his blood pressure reacts to changing angles quickly. He's going to be back there for a little bit longer, so I'm just passing the time! This afternoon at 4, we get to meet with a Cardiologist! We are so excited! I hope that we get some answers from him. We're told he's really good. He trained with one of our cardiologist's in UT! Cross your fingers for us!
Tuesday:
The plane rides were good. We spent the whole day getting on and off planes. It was tiring, but Stewart was able to make it through the airports without too many problems. We got to our hotel at about 11:15 pm and decided that we were going to just go to bed, and go to the ER in the morning.
Wednesday:
We got up in the morning and went into St. Mary's Hospital's Emergency Room. (We had to do this so that we could get an appointment with the doctor faster.) We got right in and they took us back to a room. There was a sign on the wall that said that EVERY patient had to get dressed in a gown, so we were expecting someone to come give us one or something. Instead a nurse came in and asked us what was going on. While we were telling her about Stewart, the Doctor came in. We finished telling them what was going on, and they told us to just go over to the Mayo Clinic (which is a separate building) and check to see if there happened to be a missed appointment for the Cardiologist.
We went to the Clinic, got checked in, and sat and waited from 12:30 to just before 4. Stewart was in a wheelchair, because he wasn't feeling well. I had to go to the bathroom, so I asked the lady at the desk to keep an eye on him. When I came back, I found Stewart on the floor with 3 different ladies around him. He had passed out and fell out of his chair! Soon an ambulance came. We decided that since we had waited all day for an appointment and we still hadn't gotten one, that we'd go the the ER again. The ride in the ambulance was uneventful, which was good. The guy that was first on the scene after Stewart passed out, said that he felt Stewart's heart out of rhythm.
When we got to the ER, they did an EKG, chest X-Ray, and gave him an IV. Eventually they decided that they needed to keep him over night to watch him. (You wouldn't believe how HUGE this hospital is! It's seriously a 1/2 mile down a few hallways from the ER to where his room was!) Another doctor came in to talk to us, and we told him the whole story again. He scheduled a bunch of tests, and then released us! It was the shortest hospital stay ever!
Thursday:
We got up early in the morning, and Stewart got a Holter Monitor on. Then, we got blood drawn. Then he had an Echocardiogram done. Then after lunch, we waited in the waiting room at the Neurologist's office to try and get an appointment with one of them. We waited for almost 4 hours there. When they were no longer taking patients, we walked around a little street fair they do on Thursdays and went back to the hotel. You wouldn't think that waiting around is tiring, but it is.
Friday:
I am sitting in an office waiting room at St. Mary's. Stewart is having a Tilt Table Test done. It checks how his blood pressure reacts to changing angles quickly. He's going to be back there for a little bit longer, so I'm just passing the time! This afternoon at 4, we get to meet with a Cardiologist! We are so excited! I hope that we get some answers from him. We're told he's really good. He trained with one of our cardiologist's in UT! Cross your fingers for us!
Thursday, August 12, 2010
Graditude
So I have been thinking a lot about all of the nice things that everyone has done for us. I am so grateful for everyone of you and all you have done we have the best friends and family. I was thinking about it the other day and I was telling Ciera how amazing it is that right now our economy is screwed up, but everyone has gone out of their ways to help us and give us the hope and money that we need to go out to the Mayo Clinic and do everything that we can to fix me. Thank you all so much.
In the past few months, we have had people that we don't know, people that we barely know, and people that we consider family and that are family step up to the plate to help us. The news doesn't show much goodness, but they should. I know that there are more people out there like those around us, and those people deserve some recognition! If the news took one day to tell only uplifting stories, the world would be a better place. I think that we all get caught up in looking at the negative, but everyone that has helped us has showed us all of the positive that surrounds us.
Thank you so much for your prayers, your support, and everything else! We truly love you all!
In the past few months, we have had people that we don't know, people that we barely know, and people that we consider family and that are family step up to the plate to help us. The news doesn't show much goodness, but they should. I know that there are more people out there like those around us, and those people deserve some recognition! If the news took one day to tell only uplifting stories, the world would be a better place. I think that we all get caught up in looking at the negative, but everyone that has helped us has showed us all of the positive that surrounds us.
Thank you so much for your prayers, your support, and everything else! We truly love you all!
Monday, August 9, 2010
Booked Our Stuff!
Minnesota is getting closer! We're going to go in about a week. (I don't know everyone that reads this, so I'm not going to put dates... Our house is going to be watched though!)
It seems surreal that we are going to go so soon! Stewart could get better soon! We have hope. Something that we haven't had in a long time. Our lives right now are surrounded by anticipation. That anticipation brings A LOT of stress with it! I have to wean the baby, because there are too many unknown illnesses at the Mayo Clinic. Stewart called them today to make sure that we could get into see a doctor before we got tickets and everything, and the lady he talked to said that there were three cases of leprosy just recently!
So, we've had a productive day. Stewart is still passing out a lot, it's weird because he just keeps getting worse. We keep hoping that we'll just wake up and he'll be better, but so far the opposite has happened.
I just know that he will get better. We've been through too much for him to not get better!
It seems surreal that we are going to go so soon! Stewart could get better soon! We have hope. Something that we haven't had in a long time. Our lives right now are surrounded by anticipation. That anticipation brings A LOT of stress with it! I have to wean the baby, because there are too many unknown illnesses at the Mayo Clinic. Stewart called them today to make sure that we could get into see a doctor before we got tickets and everything, and the lady he talked to said that there were three cases of leprosy just recently!
So, we've had a productive day. Stewart is still passing out a lot, it's weird because he just keeps getting worse. We keep hoping that we'll just wake up and he'll be better, but so far the opposite has happened.
I just know that he will get better. We've been through too much for him to not get better!
Sunday, August 8, 2010
Over 2000 views!
Have any of you scrolled down to the bottom of the page and seen the little numbers down there? Well, those numbers are counting how many people have looked at this blog. Last time I checked it was like 2067 or something like that. I can't believe that in the 3 weeks or so since we started this blog, that it has been looked at that many times! That means that there has to be more than the 12 or so people that have told me they read it, and those that follow! YAY! Thank you for your support, and for continuing to check up on us!
I'm getting the things ready for the on-line auction. So, in the next few days, HOPEFULLY I'll figure out how I want to do it, and the best way to have it set up! Thanks for everything!
I'm getting the things ready for the on-line auction. So, in the next few days, HOPEFULLY I'll figure out how I want to do it, and the best way to have it set up! Thanks for everything!
Safety Concerns
I've been told by a few people, including a comment on my last post, that we need to make sure that Stewart is careful with the kids. I just want everyone to know that we are VERY careful. If Stewart doesn't feel well, he doesn't hold the kids. He stays away from them as much as possible. I have seen Stewart get hurt too many times to put my kids in that situation too. Stewart no longer drives. He doesn't work. He doesn't go anywhere alone. He doesn't do much of anything. Sometimes I will need to leave him home by himself, but that doesn't happen very often either. We have spent almost everyday (only separated because I got sick when he had his last surgery) of the past year together.
When Stewart fell down the stairs, it wasn't because he passed out. It was because he slipped. He missed a step, and lost his balance. He was trying to walk down the stairs with the lights off because Keagan was asleep. He passed out AFTER he fell. I just want people to know that we are being careful.
Can you imagine if everything that you once did for your family was taken away from you? You were told that you couldn't work. You couldn't hold your kids whenever you wanted. You couldn't drive your family around. You couldn't do any of the things that you want and need to do for your family. That's how life is for Stewart. He can't work, because it's a HUGE liability on us and his employer. He can't hold the boys all the time or when he's alone, because if he starts feeling sick, he might not be able to put them down. He can't drive because of the obvious.
He really can't do much. So, what he can do, he does. He helps me as much as possible. Putting the baby in bed, was helping me. I had just has surgery, and couldn't walk up and down the stairs a lot, so he was helping me.
I love my boys. All three of them. I don't want anything bad to happen to them. If I felt AT ALL like one of my baby's was in danger, I wouldn't let Stewart hold them. I don't let him. I know when things are getting bad. You can't be together as much as we have and not know.
Thank you for your concern. I hope that clarifying things helps everyone know a little bit more about what is going on with us.
When Stewart fell down the stairs, it wasn't because he passed out. It was because he slipped. He missed a step, and lost his balance. He was trying to walk down the stairs with the lights off because Keagan was asleep. He passed out AFTER he fell. I just want people to know that we are being careful.
Can you imagine if everything that you once did for your family was taken away from you? You were told that you couldn't work. You couldn't hold your kids whenever you wanted. You couldn't drive your family around. You couldn't do any of the things that you want and need to do for your family. That's how life is for Stewart. He can't work, because it's a HUGE liability on us and his employer. He can't hold the boys all the time or when he's alone, because if he starts feeling sick, he might not be able to put them down. He can't drive because of the obvious.
He really can't do much. So, what he can do, he does. He helps me as much as possible. Putting the baby in bed, was helping me. I had just has surgery, and couldn't walk up and down the stairs a lot, so he was helping me.
I love my boys. All three of them. I don't want anything bad to happen to them. If I felt AT ALL like one of my baby's was in danger, I wouldn't let Stewart hold them. I don't let him. I know when things are getting bad. You can't be together as much as we have and not know.
Thank you for your concern. I hope that clarifying things helps everyone know a little bit more about what is going on with us.
Friday, August 6, 2010
Stairs and Chairs
Today was an interesting one. Stewart is helping our neighbors by painting around their windows. He has been working on it for a little while now, and today was no exception. We went over there, and he started to actually paint today (instead of just put tape up). He was doing really well, so we decided to leave him alone for a little while and go grab some treats from the dollar store. We weren't gone for more than 5 minutes when I got a call from Stewart because he fell. Again. He passed out and hit his head on a chair, and cracked it open. Not deep enough to need stitches, but enough that we put a butterfly bandage on it.
Tonight, he put Keagan to bed. He carried him upstairs, and on his way down, he missed a step and fell. Down. Half of the stairs. Because he fell, he passed out again. And again after that.
Really? He fell twice in one day? Granted, they were different situations, but still. Twice in one day isn't something we're used to! Let's just say that some tears were shed, and we're both pretty upset about it. I just hope that we can get to Minnesota soon!
Tonight, he put Keagan to bed. He carried him upstairs, and on his way down, he missed a step and fell. Down. Half of the stairs. Because he fell, he passed out again. And again after that.
Really? He fell twice in one day? Granted, they were different situations, but still. Twice in one day isn't something we're used to! Let's just say that some tears were shed, and we're both pretty upset about it. I just hope that we can get to Minnesota soon!
Thursday, August 5, 2010
Quick Surgery update
I had my surgery yesterday. It went really well, the medicine they gave me made me sick, but other than that it was good.
They found a "Substantial amount, but mild case" of Endometriosis. They cleaned it all out and hopefully I will start to get better soon!
Thank you for your prayers and concern!
Tuesday, August 3, 2010
Surgery
It's going to be a busy couple of days ahead of us! I'm having surgery tomorrow. It's outpatient, so I'll only be there for a few hours, but it's still going to be hard. My mom is going to watch Hayden and Keagan during the surgery. Then we'll take Keagan home with us and Hayden is going to go camping with my parents. We'll get him back on Sunday sometime.
I hope that they can find out what is going on with my poor stomach so that we can get Stewart taken care of too!
We're planning on going out to Minnesota either the 16th or the 23rd of this month! It's coming up people!
I hope that they can find out what is going on with my poor stomach so that we can get Stewart taken care of too!
We're planning on going out to Minnesota either the 16th or the 23rd of this month! It's coming up people!
Sunday, August 1, 2010
Fundraiser
The fundraiser was last night, and it was a HUGE success! I can't even tell you how awesome it was!
We got there early to help set everything up. Stewart wasn't feeling well, so he tried to help as much as he could, but kept passing out, we eventually made him just sit on a chair with someone by him all the time.
We were putting the final auction items out when people started arriving. It was so cool to see how many people came out! As I walked around talking to people (in between taking care of Stewart and the kids) I met a family that came, just because they heard it on the radio! Really? People actually do that? I couldn't believe it. Then, I met the girls from deMirour Image. They all came because they got a flyer! They also posted about it on their cute blog! They took a picture with Stewart. It was sweet! We really appreciated them.
Our friend's Brent and Lorie brought some people from Lorie's work (AWESOME!). Our Family doctor, and his nurse came with their families. Seriously, we live in THE most AMAZING place! There were a few families that came from my parent's neighborhood (they live an hour and a half away!) AND my Uncle Bruce drove up BY HIMSELF!!! I can't believe the support and response we got from people.
The dinner was DELICIOUS!!! Thanks to everyone that served (Stewart's sisters, mom and dad, and the Young Men and Women). Thanks especially to Firehouse, Old Grist Mill, and Casper's.
The Silent Auction was awesome! Almost everything got sold.
The Live Auction was a BLAST!!! Thank you Brother and Sister Erickson for being the Auctioneers! They got pretty much everything sold too.
Stewart suddenly got a fever last night. He left as the Live Auction was getting started. He passed out a lot while he was there and just felt really bad. He was sad that he couldn't stay longer, but it was best that he went home.
Everyone helped out so much! My parent's donated a bunch of stuff (those caramels I told you about? They're gone! All of them! I didn't even get one!). My sister, my sweet little sister, one of my BEST friends, donated 2 of her prom dresses! (They sold for REALLY cheap! I felt bad, but she was happy she could help.) My parent's neighbor donated some Edgers. Stewart's sisters and mom donated blankets, bags and bows. I couldn't believe it! I made a carseat/ nursing cover.
Thank you most of all to Tiesha and Jessica! Seriously, you two are amazing! Jessica, I truly do believe that you have been our guardian angel! Everything you touch turns to gold. And last night was no exception! Tiesha, thank you for taking the time away from your sick baby to help us. I know how hard it is to have a sick family member and being away from them is hard.
I've got pictures, but unfortunately they are all on my Dad's camera... So, I'll have to post them when I get them!
BUT our GRAND TOTAL from last night (and the money that was collected at the auction) is....
$4,018.51!!!!!!
That makes our total with everything we've been given including last night....
$6,300.51!!!!!!!!
We're almost there! Just a little bit more! Thank you EVERYONE!!! I'm going to try to do my on-line auction as soon as we get the items that weren't sold last night sorted out! Keep checking back for more info and for pictures!
We got there early to help set everything up. Stewart wasn't feeling well, so he tried to help as much as he could, but kept passing out, we eventually made him just sit on a chair with someone by him all the time.
We were putting the final auction items out when people started arriving. It was so cool to see how many people came out! As I walked around talking to people (in between taking care of Stewart and the kids) I met a family that came, just because they heard it on the radio! Really? People actually do that? I couldn't believe it. Then, I met the girls from deMirour Image. They all came because they got a flyer! They also posted about it on their cute blog! They took a picture with Stewart. It was sweet! We really appreciated them.
Our friend's Brent and Lorie brought some people from Lorie's work (AWESOME!). Our Family doctor, and his nurse came with their families. Seriously, we live in THE most AMAZING place! There were a few families that came from my parent's neighborhood (they live an hour and a half away!) AND my Uncle Bruce drove up BY HIMSELF!!! I can't believe the support and response we got from people.
The dinner was DELICIOUS!!! Thanks to everyone that served (Stewart's sisters, mom and dad, and the Young Men and Women). Thanks especially to Firehouse, Old Grist Mill, and Casper's.
The Silent Auction was awesome! Almost everything got sold.
The Live Auction was a BLAST!!! Thank you Brother and Sister Erickson for being the Auctioneers! They got pretty much everything sold too.
Stewart suddenly got a fever last night. He left as the Live Auction was getting started. He passed out a lot while he was there and just felt really bad. He was sad that he couldn't stay longer, but it was best that he went home.
Everyone helped out so much! My parent's donated a bunch of stuff (those caramels I told you about? They're gone! All of them! I didn't even get one!). My sister, my sweet little sister, one of my BEST friends, donated 2 of her prom dresses! (They sold for REALLY cheap! I felt bad, but she was happy she could help.) My parent's neighbor donated some Edgers. Stewart's sisters and mom donated blankets, bags and bows. I couldn't believe it! I made a carseat/ nursing cover.
Thank you most of all to Tiesha and Jessica! Seriously, you two are amazing! Jessica, I truly do believe that you have been our guardian angel! Everything you touch turns to gold. And last night was no exception! Tiesha, thank you for taking the time away from your sick baby to help us. I know how hard it is to have a sick family member and being away from them is hard.
I've got pictures, but unfortunately they are all on my Dad's camera... So, I'll have to post them when I get them!
BUT our GRAND TOTAL from last night (and the money that was collected at the auction) is....
$4,018.51!!!!!!
That makes our total with everything we've been given including last night....
$6,300.51!!!!!!!!
We're almost there! Just a little bit more! Thank you EVERYONE!!! I'm going to try to do my on-line auction as soon as we get the items that weren't sold last night sorted out! Keep checking back for more info and for pictures!
Thursday, July 29, 2010
Another Day
So, Stewart told me that I should write more about what is going on with him, so here ya go.
Tonight, Stewart has passed out 8 times. He'll be okay for a minute, then go out again. It's not very fun. It's weird because the kids can tell when something is wrong. Keagan starts crying, and Hayden will usually help me, but sometimes he gets antsy. Tonight he decided that he was going to help by pouring water out all over Stewart's face, just as he woke up and breathed in. Not a fun experience. Really though. At least he's trying to help. At least he's not purposely getting into trouble while Stewart's sick.
Stewart watched Hayden the other night while I went to the neighbor's house to help (I was supposed to help, but I had Keagan, and he didn't want me to put him down) make bows for the auction. Stewart had Hayden alone just long enough to put him in bed and then walk downstairs, when I got a phone call from him. He told me that he had just passed out and bumped his head. Apparently what happened was this: Stewart took Hayden to bed, said prayers, and left the room. He started walking down the stairs and started to feel sick, so he sat down. He had his legs straight out not propped against the stairs and felt like he was going to pass out, so he sat up a little to fix his feet so he wouldn't slide down the stairs. When he sat up, he passed out and hit his head against one of the rails on the stairs. He got a nasty looking bruise. He sent me a picture. I showed the girls that I was with and left not too long after that.
That was on Sunday. Today is Thursday, and the bruise is gone. (I wish that when I fell and got hurt, my bruises would go away that fast!)
I get phone calls like that everytime I leave Stewart alone. Mostly because he thinks that he can take just ONE MORE STEP. But what am I supposed to do? Not go out? Not take care of the things I have to take care of? I ask him to sit, to stay where he is, and he usually does. It's just he has to use the bathroom, or something like that.
I don't leave very often. I don't leave for very long. And I don't leave him with one of the kids by himself, unless they are going to sleep or already asleep.
Have you ever spent EVERYDAY with your spouse/boyfriend/anyone? It's hard. Sure you love them. But you need a break. You really do. Stewart and I have been married for 3 1/2 years, we've spent over a year of it together 24/7.
Tonight, Stewart has passed out 8 times. He'll be okay for a minute, then go out again. It's not very fun. It's weird because the kids can tell when something is wrong. Keagan starts crying, and Hayden will usually help me, but sometimes he gets antsy. Tonight he decided that he was going to help by pouring water out all over Stewart's face, just as he woke up and breathed in. Not a fun experience. Really though. At least he's trying to help. At least he's not purposely getting into trouble while Stewart's sick.
Stewart watched Hayden the other night while I went to the neighbor's house to help (I was supposed to help, but I had Keagan, and he didn't want me to put him down) make bows for the auction. Stewart had Hayden alone just long enough to put him in bed and then walk downstairs, when I got a phone call from him. He told me that he had just passed out and bumped his head. Apparently what happened was this: Stewart took Hayden to bed, said prayers, and left the room. He started walking down the stairs and started to feel sick, so he sat down. He had his legs straight out not propped against the stairs and felt like he was going to pass out, so he sat up a little to fix his feet so he wouldn't slide down the stairs. When he sat up, he passed out and hit his head against one of the rails on the stairs. He got a nasty looking bruise. He sent me a picture. I showed the girls that I was with and left not too long after that.
That was on Sunday. Today is Thursday, and the bruise is gone. (I wish that when I fell and got hurt, my bruises would go away that fast!)
I get phone calls like that everytime I leave Stewart alone. Mostly because he thinks that he can take just ONE MORE STEP. But what am I supposed to do? Not go out? Not take care of the things I have to take care of? I ask him to sit, to stay where he is, and he usually does. It's just he has to use the bathroom, or something like that.
I don't leave very often. I don't leave for very long. And I don't leave him with one of the kids by himself, unless they are going to sleep or already asleep.
Have you ever spent EVERYDAY with your spouse/boyfriend/anyone? It's hard. Sure you love them. But you need a break. You really do. Stewart and I have been married for 3 1/2 years, we've spent over a year of it together 24/7.
Wednesday, July 28, 2010
New Flyer
We have an updated version of the flyer!
So, when you get to the dinner (if you go (I hope you go!)), you'll see a pretty wishing well that will have caramels, cookies and popcorn. You can make a donation by dropping money into the well, and pick an item that you want! (The caramels are HOMEMADE!!! My mom's AMAZING caramels! We seriously hoard these. Like stuff our pockets, our kids pockets, and the diaper bag with the things! They are DELICIOUS!!)
It's amazing all of the things that have been donated and all the work that has gone into it and the fast timeline that it has all taken place in!
So, when you get to the dinner (if you go (I hope you go!)), you'll see a pretty wishing well that will have caramels, cookies and popcorn. You can make a donation by dropping money into the well, and pick an item that you want! (The caramels are HOMEMADE!!! My mom's AMAZING caramels! We seriously hoard these. Like stuff our pockets, our kids pockets, and the diaper bag with the things! They are DELICIOUS!!)
Then you'll pay for your meal, find a seat, and get your food SERVED to you. No waiting in a buffet line, you GET SERVED!!! Then when you're done eating you'll get dessert! Seriously! Pasta, Salad, Bread, AND a DESSERT for $8? Unheard of!
While you're eating, you can go to a table that has silent auction items. Feel free to bid on the things that are there! There's some awesome stuff! There really is. Gift Cards, Certificates to get free stuff, and MUCH MUCH more!
When dinner is over, we'll all congregate to the LIVE AUCTION!!! (The kids can go play on the bouncy house which will be supervised.) There are some REALLY AMAZING things in the live auction. Let me name a few... Baby Blankets, full sized blankets, car seat cover, holiday decorations, quote sign, bows, and MUCH MUCH MORE! (It's late and I can't think of what else is in it!)
Anyway, as you can see, there are a lot of cool things that are going to be happening. We'd love to see you all there. We'd love to be able to thank you all in person for your support. Seriously, you people are amazing. You have shown us more love than we know what to do with!
We'll make sure to take LOTS of pictures and post them here for those of you that won't be able to make it.
Thank you again! For EVERYTHING!
Tuesday, July 27, 2010
Getting Closer!
Thanks to all of your help, we are getting closer to our goal! We are so excited! $580 has been donated so far! You guys are seriously amazing. We are so blessed to have such good friends that keep helping us anyway they can! Our family's are awesome too! I really can't believe the support that we have received. Thank you!
Monday, July 26, 2010
QUESTIONS
I was just thinking after writing my last post, that maybe you readers have some questions! So, now is your chance to ask them! Ask what it's like for Stewart to pass out, for me, or for him. Ask what ever you want! We're more than happy to answer your questions! You have until Wednesday night to ask your questions, and I'll try to answer them with my Friday post!
Updates
I guess I should be more informative when I post Old Posts! Stewart read the last one and asked me why I didn't explain anything. So here is an explanation!
When Stewart was sick after his first surgery, we talked with the doctor about what our options would be if the second surgery didn't work. One of the options was a pacemaker. We didn't want to go that route, because in order for them to put a pacemaker on him, they would have to override the whole electrical system of his heart. If they did that, he could become completely pacemaker dependent. If something happened to the pacemaker, then Stewart would die. Obviously that wasn't something that we wanted.
Now, a pacemaker isn't even an option, because the doctor's can't see any irregular heart beats. So to override his electrical system to make it beat right would be completely illogical!
I hope that explains my last post a little bit! If you have more questions, please feel free to ask!
When Stewart was sick after his first surgery, we talked with the doctor about what our options would be if the second surgery didn't work. One of the options was a pacemaker. We didn't want to go that route, because in order for them to put a pacemaker on him, they would have to override the whole electrical system of his heart. If they did that, he could become completely pacemaker dependent. If something happened to the pacemaker, then Stewart would die. Obviously that wasn't something that we wanted.
Now, a pacemaker isn't even an option, because the doctor's can't see any irregular heart beats. So to override his electrical system to make it beat right would be completely illogical!
I hope that explains my last post a little bit! If you have more questions, please feel free to ask!
Sunday, July 25, 2010
Old Posts!
I was thinking the other day, that I should update everyone on what has happened since I started blogging. Here is a post that I wrote right before Stewart's second surgery.
WEDNESDAY, APRIL 29, 2009
Stewart's heart...
Well, on June 15, we are going to have Stewart's heart operated on again...
This time it's for Atrial Tachycardia. Say that 5 times fast! Anyway, it's like A-Fib, but instead of his heart beating abnormally, it's beating too fast at random times. Hopefully this will be the last surgery he has to have. If not he'll probably end up getting a pacemaker. Not fun.
He's doing alright. He is still working and everything, but he doesn't feel as good as he wishes he did.
This time it's for Atrial Tachycardia. Say that 5 times fast! Anyway, it's like A-Fib, but instead of his heart beating abnormally, it's beating too fast at random times. Hopefully this will be the last surgery he has to have. If not he'll probably end up getting a pacemaker. Not fun.
He's doing alright. He is still working and everything, but he doesn't feel as good as he wishes he did.
Long Weekend
We had a pretty good weekend. We visited my family while they were camping. It was a lot of fun. Stewart passed out a few times while we were there. He was able to relax a lot while we were there, so it was really nice.
My parents really love our kids, so do my siblings and their wives. Hayden had a blast playing outside and Keagan was held pretty much the ENTIRE time!
We really appreciate everything that everyone has done for us! Thank you for everything!
My parents really love our kids, so do my siblings and their wives. Hayden had a blast playing outside and Keagan was held pretty much the ENTIRE time!
We really appreciate everything that everyone has done for us! Thank you for everything!
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